Notes From The GiaSphere The many facets of being Gia

• We are having an especially cold winter, with snow today for the second time in four years. #
• One would thing, "So much for global warming," but last summer was the sixth hottest on record here. #
• Inclement weather challenges our independence. Too cold and wet, and we can't get out lest we risk further illness. #
• Too hot, and a power wheelchair is apt to stop dead in the middle of an intersection. Our controllers overheat easily. #

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• I've been sick again already this year, a head-and-chest cold this time. #
• As my disease progresses, I seem to pick up every germ in the neighborhood. #
• I'm ready for hot weather. #

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• I've been sick again already this year, a head-and-chest cold this time. #
• As my disease progresses, I seem to pick up every germ in the neighborhood. #
• I'm ready for hot weather. #

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• When it comes to standards, most disabled folks I know insist on being held to the sames one as everyone else. #
• I'm different, and that's weird considering I'm such a dignity nut. #
• Most of the time, there is no physical, financial, mathematical, or any other way I could possibly meet regular standards. #
• I'd much rather have a separate set of adaptive standards that I can meet instead of always falling short of the "normal" ones. #
• I always sign up for every adaptive service for which I qualify, but I never take more than I actually need. #
• I hate being such a slave to my budget. #

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• When it comes to standards, most disabled folks I know insist on being held to the sames one as everyone else. #
• I'm different, and that's weird considering I'm such a dignity nut. #
• Most of the time, there is no physical, financial, mathematical, or any other way I could possibly meet regular standards. #
• I'd much rather have a separate set of adaptive standards that I can meet instead of always falling short of the "normal" ones. #
• I always sign up for every adaptive service for which I qualify, but I never take more than I actually need. #
• I hate being such a slave to my budget. #

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• I was putting away some laundry the other day. I can only do 3 or 4 pieces at a time. I realized how little I get out. #
• My hamper was full of only sweatpants and t-shirts I wear only around the house, pajamas, and loungewear. #
• No going out clothes at all that had to be hung up. The main reason I don't go anywhere is low income. #
• I am still having a great deal of difficulty with meal prep. I used to love to cook. My last relapse took that from me. #

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• I was putting away some laundry the other day. I can only do 3 or 4 pieces at a time. I realized how little I get out. #
• My hamper was full of only sweatpants and t-shirts I wear only around the house, pajamas, and loungewear. #
• No going out clothes at all that had to be hung up. The main reason I don't go anywhere is low income. #
• I am still having a great deal of difficulty with meal prep. I used to love to cook. My last relapse took that from me. #

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• I"ve been following the H & M / Walmart clothing scandal. #
• Some call it a backlash against freegans. I call it a hate crime. #
• many disabled people are forced by society to become freegans. #
• i have had to personally partake of others' trash many times. #
• The typical disabled person receives less than $700 per month to live on. #
• Many of us rely on clothing donatiions and such to survive. #
• Destroying the clothing can, therefore, be construed as cruelty to the infirm. #
• That is a crime in most if not all states now. #
• It isn't very green or good for the planet either. #

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• I"ve been following the H & M / Walmart clothing scandal. #
• Some call it a backlash against freegans. I call it a hate crime. #
• many disabled people are forced by society to become freegans. #
• i have had to personally partake of others' trash many times. #
• The typical disabled person receives less than $700 per month to live on. #
• Many of us rely on clothing donatiions and such to survive. #
• Destroying the clothing can, therefore, be construed as cruelty to the infirm. #
• That is a crime in most if not all states now. #
• It isn't very green or good for the planet either. #

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• I applaud this heartily! I have been ill for going on ten years with no resolution. #
• Every time I go in with a new sympton, my doctors seem to jump for joy on the inside, with $$$$$$ in their eyes. #
• "Oh, boy! A new sympton! That's 20 more tests we can run–and charge Medicare for. Woohoo!" #
• Even though they know full well that said symptom is just typical of the natural progression of my illness–one they can't cure. #
• The goal has got to be to cure or at least rehabilitate everyone we can. But the systems we have in place now reward dependency. #
• Doc says, "The longer I can keep this person sick, the more services I can charge fees for." #
• Worse, far too many social service programs say, "If you try, you die." No, I'm not exaggerating here. #
• Disabled people can often lose even life-sustaining services if they are observed trying to improve their conditions or circumstances. #
• For example, Medicare has something called the "homebound rule" for disabled people receiving skilled nursing and attendant care at home. #
• While Medicare is paying for these services, the disabled person may not leave his or her home except for very limited reasons. #
• They may go to any medical facility, of course. They may go to church once per week. They may get their hair done once per week. That's it. #
• If said person is seen having dinner with family at a local restaurant, or sometimes even at a funeral, benefits _gone_. #
• Even if the person whose family loved them enough to include them is a quadriplegic needing skilled nursing to stay alive! #
• Other disabled people can lose other types of benefits, especially insurance, sometimes even if they are just seen outside! #
• Even if they're sitting in their wheelchair outside! I'm not kidding. I know people these things have happened to. #
• At least, on one positive note, Social Security has gotten a lot better about encouraging work among the disabled. #
• Word in the dis community has it that even more positive changes in that vein are on their way. Let's hope so. #
• To all my differently-abled comrades out theire, let's each of us try something today, even if you have to hide it. Be safe–but _try_! #
• Book of Love is my favorite music group. My favorite song of theirs, incidentally, is called "Try." It's my anthem! #
• I tried cooking supper. It wasn't great gourmet, but we ate. #

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